HavenHouse St. Louis 2014

Share Your Story

AM Family

We found out this past year that our adopted four year old twins have a form of Muscular Dystrophy called Charcot-Marie-Tooth. We were accepted to be seen at the Shriners Hospital in St. Louis the first week in January 2011.

Once we got the notification we immediately booked a hotel close to the hospital. We received a 'discounted' rate but it was still $65 plus tax. A couple of weeks later I get a phone call from the Median Shrine in Wichita...


Twitter Updates


Who is HH | Staying at HH | How to Help | Friends of HH | Events and Media | Contact Us | Location | FAQ | Privacy
click to check