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We found out this past year that our adopted four year old twins have a form of Muscular Dystrophy called Charcot-Marie-Tooth. We were accepted to be seen at the Shriners Hospital in St. Louis the first week in January 2011.
Once we got the notification we immediately booked a hotel close to the hospital. We received a 'discounted' rate but it was still $65 plus tax. A couple of weeks later I get a phone call from the Median Shrine in Wichita...